Yessica's Journey Blog

Welcome to the Yessica's Journey Blog Site, a Journey through Mental Health, Wellbeing and Creativity.


Leave a comment

NHS Early Intervention Psychosis Team Staff Away Day

© Copyright 2013 Anastacia Tohill. All rights reserved. Please do not copy or download images or text.

Norfolk and Suffolk NHS Foundation Trust Website

I was pleased to be invited to a Staff Away Day by Psychologist Ruth Turner who works for the Norfolk and Suffolk NHS Foundation Trust’s Early Intervention Psychosis Team. I was asked to do a presentation of my mental health journey and incorporate an animation film I made when I first become unwell whilst studying for my degree. I was also asked to show my showreel of animations including ‘Yessica’s Journey’ which is hoped to be used by the NHS and Mind in training workshops and events when completed. The event took place at Carrow Road in Norwich.

Ruth Turner and Anastacia with Staff at the Early Intervention Psychosis Team Away Day at Carrow Road.

Ruth Turner and Anastacia with Staff at the Early Intervention Psychosis Team Away Day at Carrow Road. I got everyone to make coloured cone hats as a joke which was fun.

IMG_2546

Anastacia doing her presentation to the Early Intervention Psychosis Team

I first met Ruth when I was invited to do an event by the Chalk Circle Theatre Company last year. I was asked to talk about my journey and show my animations and work. This was the first time I had ever done anything like this and I was extremely nervous. I invited a representative from the NHS and Mind as both organisations have helped to fund the project. Maggie Wheeler who was the Chair of the NHS Trust and was also my mentor for the ‘Yessica’s Journey’ project kindly asked Ruth to represent the Trust which is how I met her. The project has given me so many opportunities to meet people within the NHS and be involved with the Trust.

When Ruth asked me I was really pleased but also a bit nervous as I knew there would be around 40 staff there and I was also given around an hour to do the presentation, something I am not used to doing. I went in the week before to Carrow Road to make sure my Apple laptop worked on their projector and it was a good job I did as they had to get a special adapter. The presentation went really well and although I was a bit nervous to start with I noticed that I was much more confident that I thought I would be. I was asked so many questions by the staff and everyone seemed really interested in my journey and animations which was so nice and quite unexpected.

IMG_2539

Anastacia presenting which image of Yessica in the background

I stayed for the whole day and had lunch with the staff and was invited to join in staff group activities which was fun. Everyone was so nice and friendly and they made me feel really welcome. I was also asked by many staff if I would be interested in working with them in the future doing more talks and being involved in art with the team which I was really pleased about and was not expecting. I got some really good feedback from staff so that was really nice and I was pleased the talk was successful and helpful. Someone commented on the fact that I presented it by talking naturally about my journey and didn’t follow a plan. In the past I would never have been able to do this as talking about yourself is quite hard but I have noticed that I am less nervous and more confident for the first time in my life about public speaking and presenting, something I never thought I would be able to do without feeling nervous.

I think it is through my journey and experience, especially after the relapse I had last year and through the talking therapy I received from the NHS that has helped me with my confidence. Most of my life I feel I have wasted time worrying about what other people think of me, what if I muck up, what if something goes wrong, what if… but what if – so many if’s and but’s. I have learned slowly through experience that it really does not matter and once you conquer that fear you can find the confidence within yourself to no longer be afraid. We sometimes spend our lives living in fear so this really is an amazing gift which I feel I have gained through my mental health experience. Something good and positive has come from my journey and never in a million years did I ever think I would conquer my fears in talking to large groups and most importantly not worrying about it. To gain confidence is a wonderful thing, it can help you do so much more in life. To build confidence takes time and patience but the rewards are huge.

IMG_2540

Staff from the Early Intervention Team

IMG_2538

Peter Edge on the left at the Staff Away Day

This slideshow requires JavaScript.

Peter Edge who works for the NHS was also at the event and it was really nice to see him there as he used to be my mentor for the project. Above is a Slideshow of images from the staff event.

Advertisements


Leave a comment

4.48 Psychosis Sarah Kane Performance by Chalk Circle Theatre Company 8th-10th November

Link to Chalk Circle Theatre Company Facebook Page

4.48 Psychosis by Sarah Kane is a play being performed by the Chalk Circle Theatre Company at the Garage in Norwich from the 8th -10th November at 7.30pm. You can get tickets from the Theatre Royal for £10 and there are concessions.  For further information about the play please see poster below. To find out more about the Chalk Circle Theatre Company please click on the link above to their Facebook page.

4.48 Psychosis Sarah Kane Chalk Circle Theatre Company Poster

Quote from Poster ‘A poetic exploration of love and death and what happens to a person’s mind when the barriers which distinguish between reality and different forms of imagination completely disappear’.

Poster Information from 4.48 Psychosis Chalk Circle Theatre Company

Quote from Suzannah Coppolina Director
‘Chalk Circle is a newly established professional theatre company working in collaboration with local and international theatre practitioners. Our aim is to create contemporary, innovative, challenging and cutting-edge theatre in Norwich and the surrounding area. This year we will be producing 4.48 Psychosis written by playwright Sarah Kane. Sarah Kane is one of the most powerful and controversial playwrights of our time and her plays have been widely performed in Europe and South America. We, at The Chalk Circle Theatre Company would like to support and raise awareness of mental health and aim to host panel discussions, rehearsed readings, art exhibits and workshops based around the subject matter within the play.’

© Copyright 2012 Anastacia Tohill, Yessica’s Journey Blog. All rights reserved. Please do not copy or download images or text. © Copyright Suzanna Coppolina and Adina Levay Poster for 4.48 Psychosis.


Leave a comment

Chalk Circle Theatre Company

© Copyright 2012 Anastacia Tohill, Yessica’s Journey Blog. All rights reserved. Please do not copy or download images or text. 

I was invited to a really good event at ‘Take Five’ in Norwich with the ‘Chalk Circle Theatre Company’. Concentric Circles hosted an art exhibition and talk based upon the subject matter within a play called 4.48 Psychosis written by playwright Sarah Kane. There was also exhibits of art on display which showed how people can explore their mental health difficulties through art. Suzanna Coppolina, Company Director and Adina Levay Artistic Director organised the event and had a guest speaker from Norwich and Central Norfolk Mind Robert Black, who talked about Mental Health and Psychosis. I really enjoyed the event and the Theatre Company have also asked me to do a talk on my project ‘Yessica’s Journey’ soon, so I am thrilled.

Robert Black from Norwich and Central Norfolk Mind

Quote from Suzanna Coppolina, Company Director of Chalk Circle

‘Chalk Circle is a newly established professional theatre company working in collaboration with local and international theatre practitioners.  Our aim is to create contemporary, innovative, challenging and cutting-edge theatre in Norwich and the surrounding area.

This year we will be producing 4.48 Psychosis written by playwright Sarah Kane. Sarah Kane is one of the most powerful and controversial playwrights of our time and her plays have been widely performed in Europe and South America. 4.48 Psychosis was Sarah Kane’s last play. It is a poetic exploration into the struggles of mental health, dealing with sensitive issues such as depression, anxiety and suicide. Sarah Kane herself suffered of bipolar and sadly, aged 28 took her own life.

We, at The Chalk Circle Theatre Company would like to support and raise awareness of mental health and aim to host panel discussions, rehearsed readings, art exhibits and workshops based around the subject matter within the play. Beyond the traditional means of publicity/marketing such as posters, leaflets, magazines and radio sound bites, Chalk Circle plans to use alternative forms such as street performance, happenings, open forums and events. Chalk Circle would also like to establish ongoing input for this project, offering a professional the chance to help shape this exciting production. This professional would take part in the rehearsal process helping the performers to achieve a higher understanding of the process of mental health, giving the play and the subject matter the integrity it deserves.


Leave a comment

Peter Gianfrancesco from Norwich and Central Norfolk Mind and his sister Maureen visit – Yessica’s Journey Animation Project

Peter Gianfrancesco, Chief Executive from Norwich and Central Norfolk Mind with his sister Maureen from Australia and Anastacia

Peter Gianfrancesco, Chief Executive from Norwich and Central Norfolk Mind with his sister Maureen from Australia and Anastacia

© Copyright 2012 Anastacia Tohill, Yessica’s Journey Blog. All rights reserved. Please do not copy or download images or text.

Norwich and Central Norfolk Mind Website

Peter Gianfrancesco who is the Chief Executive at Norwich and Central Norfolk Mind and his sister Maureen from Australia visited me yesterday to see the progress of the Yessica’s Journey Animation project. Peter is one of my Mentors representing Mind who has also supported the project with funding, help and advise.

I really enjoyed showing them both all the work which has been completed so far. They were both very encouraging and seemed impressed with what has been achieved so far. Thanks to both of them for coming to see me and the Yessica’s Journey Animation project and for being so supportive.


Leave a comment

Meeting with Charlie Gauvain

Charlie and Anastacia

© Copyright 2012 Anastacia Tohill, Yessica’s Journey Blog. All rights reserved. Please do not copy or download images or text.

Eye Film and Television Website

Charlie Gauvain is the new ‘Production Manager’ for the project and works as an Executive Producer at Eye Film and TV (see earlier blog for more information about charlie.  We met today for a meeting to discuss the new ‘Yessica’s Journey’ Schedule plan, Financial Plan and Contract. The meeting went well and Charlie and I will be meeting on a regular basis once a month.

Charlie’s main role is to support, advise and assist me with the project. This will include financial, planning a schedule, marketing, DVD authoring, advise on production and monitoring the progression of the project and ensure that the film is produced on time and within budget.

Charlie’s knowledge and experience of working in Film and TV for many years will be very beneficial to myself and the project and I look forward to working with him.


Leave a comment

Claire Lussignea, Lead Psychologist from the Norfolk and Suffolk NHS Foundation Trust – Question and Answer Document

© Copyright 2012 Anastacia Tohill and Claire Lussignea from the Norfolk and Suffolk NHS Foundation Trust. Yessica’s Journey Blog. All rights reserved. Please do not copy, duplicate or download text.

Norfolk and Suffolk NHS Foundation Trust Website

I attended the Service User Redesign and Communication Group meeting in January (see earlier blog). Service Users from Hellesdon Hospital – the Norfolk and Suffolk NHS Foundation Trust and other organisations were invited to the meeting to discuss two pathways – the Non Psychotic and Psychotic disorder and the Wellbeing Service.
This is the question and answer document which Claire and I produced which I am very proud of. I hope that this helps towards a positive and a greater involvement of Service Users working in partnership with the Trust to help one another and to learn from each other and to improve services and care as well as acknowledge the services which are working well. The document has been sent to the Redesign group which Claire requested and the Service Users Council and I hope that it has been helpful and encourages other service users to actively get involved in helping to shape, redesign and improve the NHS.
Thank you to Claire Lussignea, Lead Psychologist, and the Norfolk and Suffolk NHS Foundation Trust Marketing Department for kindly giving me permission to publish this document.

27th January 2012

Anastacia Tohill  |  Service User Council Member | Service User Redesign and Communications Sub Group Member.

Here are some of the questions I wanted to ask but we ran out of time at our Redesign meeting on 26th January with the Non Psychotic and Psychotic disorder Pathway Staff. If you need further clarification about the questions or more details please do not hesitate to contact me.

These are my own questions that I wanted to ask but I will pass this information onto the rest of the group who may also find it useful.

I would like to thank Claire Lussignea who is the lead Clinician and lead Psychologist at the Norfolk and Suffolk NHS Foundation Trust and was one of the members of staff on the Psychotic Disorder Pathway panel who has kindly taken the time and trouble to answer my questions. I also want to thank any other staff who also contributed to the answers. She said that we are still in the early stages of working out the Radical Redesign process and there is still a lot to be worked out and it is hard to capture complex issues. She has encouraged me to get back to her to discuss anything further from her answers. Thank you I do appreciate it and I have found it extremely helpful and encouraging.

I hope other service users and staff find it helpful and useful and I hope it encourages and helps to formulate new ideas, discussions and ways of improving the NHS system.

  1. If hope is central to recovery how will you use Service Users lived experiences to show hope to people who are experiencing Psychosis?

How will you use Service Users stories of hope?
How will you monitor the process?
How will you make sure the process is fair?

Answer: ‘Hi – we haven’t yet worked out all the detail around how we will use people with a lived experience within the service. We will be asking the service user redesign and communications group for some ideas as to how you think this would best work. However my personal thinking is that using people’s personal stories is usually a very powerful tool.’

How will you safeguard vulnerable adults who are feeling unwell and ensure they receive the right advice and message of hope? Would you provide professional training for Service Users and what would this be?

Answer: ‘There are formal training programmes which include supervision and coordination roles. There are different models used throughout the country. We will be looking at these and plan to use a tried and tested approach.’


How will you select suitable candidates for the role?

Answer: ‘Please see above’

  1. Have you thought about using creative activity as a way to help people who are experiencing Mental Health problems and creating useful projects which actually enhance peoples wellbeing and confidence and helps them to explore their own mental health?

Answer: ‘This is a very good idea. In an ideal world I would like to see such projects being service user led but with the required support and administrative support provided by the mental health service. Do you have any particular ideas? There is no barrier to us helping get these off the ground.’

  1. Research is very important in understanding Mental Health. Have you thought about using ‘Service User’ Research to enhance the Trust’s understanding of Psychosis. Using service users stories of experience, specific case studies, questionnaires, interviews. monitoring, recording and analysing the results to help improve the understanding of Psychosis?

Answer: ‘The Trust has a Research Dept which I know is supportive of Service User Research. The Early intervention Service is also very active in undertaking research into psychosis. I can provide contact details for you should you wish.’

Are you involved with other organisations with research into psychosis?

Answer: ‘Yes some of the research undertaken is collaborative with other organisations.’

  1. How will you ensure that Service Users are treated as individuals and recognise that each person has a unique experience of Mental Health? Are you going to move away from the typical tick box system and one size fits all way of thinking?

Answer: ‘I think what you are talking about here is a change in culture and in attitude of staff members. Norfolk and Suffolk Foundation Trust has joined up to support IMROC which is a project looking at changing the culture and approach of mental health services to recovery. It is very focussed on putting the service user at the centre of the work. Would you like more information on this?’

The organisation is also in the process of revising its CPA paperwork. We will ensure service users participate in this review to ensure any new paperwork does not lead to a tick box system.

  1. Often personal qualities, experience and skills are equally as important as qualifications. What personal qualities and skills will you be looking for in staff.

Answer: ‘I think looking at some of the information coming out of the IMROC project will answer this better than I can. I will forward you some of the information on my return from leave and then we can have a chat if this does not answer your questions.

On every job description there is a list of personal qualities we are looking for from the staff member doing that job. We are also hoping to increase the number of job interviews that service users are on the panel for so that you are the people helping to determine who is employed.’

How will you make sure that you find the right staff with the right attitude and skills to help people experiencing mental health problems?

Answer: ‘See above.’

How will you monitor the effectiveness of staff?
How will you make sure that your staff receive proper training and guidance, support and time to ensure they give a good effective service. If staff are unhappy this sometimes reflects badly on the very people they are trying to help.

Answer: ‘All staff have clinical supervision and managerial supervision and also an annual appraisal of their effectiveness. These are the systems that are in place to support the above. However we are currently looking at Suffolk’s clinical supervision system to see if there are things we can learn from it.

The Trust’s training dept runs lots of courses and workshops for people. Some of which are mandatory. Staff are also supported to attend external courses. All this training is designed to ensure staff are receiving the necessary training and guidance to do their job effectively.’

  1. How will you ensure that you provide a fair system for everyone who experiences mental health problems. What will you do to ensure this? In a tick box type system often many people are left out from being helped as certain criteria can go against them.

Answer: ‘I am hoping that when the Payment by Results system comes in for mental health this will help for a fairer system. People will be allocated to a care cluster and each care cluster has a package of care attached to it that describes exactly what someone should get and options of things that should be thought about and discussed with them. This should mean less of a lottery about what help someone receives.’

  1. How can you ensure that assumptions are not made about what someone experiencing Psychosis says? How will you ensure that they are listened to properly? Sometimes people may have delusions but sometimes in amongst the delusions there may be some real events happening which are true. How will you differentiate this and how will you offer reassurance to someone?

Answer: ‘I think this is about the skills of the staff (so comes back to appropriate training and knowledge) and attitude of the staff (which comes back to the IMROC work and effective recruitment and supervision and appraisal).’

  1. Medication is important in helping someone to get well but talking therapy is equally as important especially in helping people to understand what is happening to them, why it is happening and how they can help themselves. It also opens the doorway to TRUST and HOPE. What talking therapies are being offered as a service by the Trust for people who are or have experienced psychosis?

Answer: ‘The care packages describe what should be offered to people with psychosis depending on which care cluster they are in. However as standard anyone with a new presentation of psychosis should be assessed for whether they are likely to benefit from CBT. However other therapies are also available depending on need. The trust provides a range of therapies including CBT, CAT, IPT and EMDR as standard.’

Is the Trust actively seeking out new and old therapies, researching therapies and trying out therapies to find out which ones work best and also find out good professional organisations and therapists which work and work well? Sometimes what works for one person will not work for others so it is important to offer a wide diverse range of therapies and therapists. It the Trust using Research to formulate ideas?

Answer: ‘The Trust is not doing all the research itself. This type of research involves many hundreds of people and therefore some people in the Trust are involved in big national studies looking at this. The National Institute for Clinical Effectiveness also periodically reviews the research evidence base for the treatment of different conditions and the Trust endeavours to follow these guidelines.’

Is this something Service Users could be involved in helping with – surveys, questionnaires etc. Monitor and recording of information perhaps so there is a database of good therapists and therapies. Could service users help the Trust in researching therapies in some way?

Answer: ‘I believe that the Trust’s Research Dept is keen to involve Service Users in research. I can provide a contact for you should you wish?’

  1. What do you think of the idea about psychiatry becoming like other medical specialities where there is a range of tests including imaging tests of the brain functions, blood tests and psychological tests to find out about susceptibility factors to mental health problems, help with diagnosis and enable help in a different way?

Answer: ‘I think this already exists for some conditions but not for others. This is not something I have discussed with colleagues but my own personal view is that we should make use of whatever is useful out there to help us understand our experiences.’


Leave a comment

Jacqui Dillon Website – Mental Health and Wellbeing

Jacqui Dillon Website

I was sent this link by a colleague and it is a very interesting and informative website which I recommend. Jacqui is a writer, public speaker, trainer and offers consultancy. She has personal and professional experience of Mental Health and Wellbeing. I bought two of her books on the website recently but have not read them yet but from what I have read on her website she is an excellent writer.


Leave a comment

BBC Mental Health Website

BBC Mental Health Website

I found this really good BBC website on Mental Health and Wellbeing. It is really informative and interesting and has a wealth of information about Mental Health Difficulties, Coping Techniques, Therapies, Medication and lots of useful links and contacts to other organisations. Click on Link above.

© Copyright 2012 Anastacia Tohill. All rights reserved. Please do not copy or download images or text.


Leave a comment

Exciting News – The Wellcome Trust has given additional funding to the Yessica’s Journey Animation Project

The Wellcome Trust Website

© Copyright 2012. All rights reserved. Please do not copy or download images/text.

FANTASTIC NEWS for 2012 The Wellcome Trust has kindly given additional funding to the
‘Yessica’s Journey’ Animation Project – Thank You.

In March 2012 Yessica’s Journey’ has been successful in applying for additional funding from the Wellcome Trust. They have kindly given a substantial sum of money in addition to their original funding for the project. I would like to thank Marie-Lise Sheppard who is the Grants Advisor and works in Grants Management for her support, help and understanding. I would also like to thank the Wellcome Trust organisation for its continued support and for believing in this project.

Anastacia Tohill, Director/Producer and Animator for the project and Charlie Gauvain who is the new Support Coordinator for the project and works as a Producer/Executive Producer at Eye Film and TV  successfully put in an application in January 2012 to apply for additional funding. Oz Osborne, Wellbeing Mentor and one of the Scriptwriters for the project and works at Time to Change also contributed to the funding application. I would like to thank Charlie and Oz for all their support and help and also to welcome Charlie to the project in his new role.

I would also like to thank the following people and organisations for their continued help and for their supportive Testimonials which we sent with the funding application form. Thank you for your kind words, encouragement and time.

Oz Osborne – Rural Equalities Coordinator with Time to Change and Freelance Community Wellbeing Mentor
Peter Gianfrancesco – Chief Executive at Norwich and Central Norfolk Mind
Peter Edge – The Wellbeing Service at Norfolk and Suffolk NHS Foundation Trust
Maggie Wheeler – Chair of the Norfolk and Suffolk NHS Foundation Trust
Roz Brooks – Director of Nursing, Quality and Patient Safety, Norfolk and Suffolk NHS Foundation Trust
Michel SyrettEditor, Pendulum Magazine Bipolar UK
Clare Dolman – Research Editor Pendulum and Chair of the National Bipolar Charity Bipolar UK (formerly MDF the Bipolar Organisation)
Dr Ian Jones – Reader in Perinatal Psychiatry, MRC Centre for Neuropsychiatric Genetics and Genomics,Department of Psychological Medicine and Neurology BDRN Research Network

I appreciate all the organisations continued support with the project and everyone in the project team who has helped with the ‘Yessica’s Journey’ project. We also sent the Script Feedback document which many people contributed to last year with the application. Thank you again to everyone who contributed to the Script Feedback Document.

Many Thanks to Everyone
Anastacia